Yssa DeWoody

Site Engagement and Enrollment Lead · Longboard Pharmaceuticals · company speakers →

Yssa DeWoody, PhD, is the new Global Site Engagement and Enrollment Lead at Longboard Pharmaceuticals. She started her career as a research mathematician working across diverse fields of study in academia and industry. This course changed dramatically after the birth of her youngest daughter who was diagnosed with a rare chromosomal disorder. Since that shift, she has acquired more than 15 years of experience in the rare epilepsy and neurodevelopmental space working closely with researchers, clinicians, patient advocates, and caregivers to drive positive change. In 2011, Yssa co-founded Ring14 USA, a non-profit committed to enhancing the quality of life for children impacted by rare neurodevelopmental disorders on the 14 th chromosome, like Ring 14, and currently serves as Director of Research. Her passion for collaboration and commitment to serve is epitomized by her involvement in several formidable consortiums, including Ring14 International (Cofounder and Past President), the Epilepsy Leadership Council, the Rare Epilepsy Network (ex officio Chair), and the Commission on Novel Technologies for Complex Copy Number Variants (founding partner). Yssa brings a unique perspective and personal passion for rare diseases to effective site engagement and thoughtful patient recruitment strategies.

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